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NEDA Week Feb 24- March 2, 2013
“Everybody Knows Somebody”
This year’s theme for Eating Disorder’s Awareness Week is “Everybody Knows Somebody”. As someone who has struggled, I wanted to write a perspective from the side of a “Somebody” regarding this deadly disease.
I never wanted to be that somebody; I didn’t strive to be “the girl with the eating disorder”, the “sick one”. I didn’t want to be the “somebody” who was talked to by her compassionate college roommates relentlessly about needing help. I didn’t want to be the “somebody” who was unable to pursue an internship despite good grades, because her professors worried that her health would stand in the way. I didn’t want to be the “somebody” who was checked on during the night by her terrified 18 year old sister to make sure she still had a pulse. I didn’t want to be the “somebody” who, at age 22, had to have her dad pick her up off the ground when she stepped out of a hotel hot tub and passed out. And I certainly didn’t want to be that “somebody” who sat in her doctor’s office a week before college graduation and had her doctor pray with her that she would live for another week to see graduation before going to a treatment program for the life-stealing disease that was threatening to kill her.
For as long as I can remember, I wanted two things. First, I wanted to be perfect. Second, I wanted to help others. As a child, I pushed myself in school, music, and sports in order to gain knowledge and skills in the various activities I was involved in. As a three year old, I forced my dad to take the training wheels off my bike as I was determined to ride on my own. This attitude was predictive of the rest of my life as I continuously pushed myself to do better. As a young piano student, I won the award nearly every month for practicing the most out of all the students. In school I worked relentlessly on the problems given to my accelerated math group in order to perfect my answers. In high school I remember staying up nearly the entire night with a friend to learn a dance for our team performance. In every facet of life, I wanted to excel. To do more. To be more. To be better.
I also wanted to help others. No matter what was happening in my life at home or at school, I sought to be a listening ear for my friends who were struggling. I didn’t want to burden others with my thoughts or feelings when they were going through their own struggles. So I pushed my emotions beneath the surface and aimed to help other’s through their pains.
My drive for perfection and inability to cope with my own problems or ask for help ultimately led to my downfall into anorexia. Several difficult circumstances took place in my life, and I was incredibly overwhelmed. I didn’t know how to talk about what I was going through, or how to ask for help without feeling like a burden to others. So I continued to act like “everything was ok”, while on the inside I was screaming. I started exercising more and more, and eating less and less. If I couldn’t control the things that were happening around me, I felt that at least I could control exactly what I ate and how much I worked out. My obsession with calories, pounds, and numbers allowed me to focus all thoughts away from the true sources of pain.
Soon, I became that “somebody”, the girl with an eating disorder.
At first I thought that I was solving things by spending all my time focused on food and exercise instead of the real issues that were hurting. I could go to the gym, then the pool, then run outside, and go back to the gym later at night. I could meticulously plan the tiny amount of calories I was allowed each day and determined the exact minute that I was allowed to have them. I created detailed charts plotting goals for weight loss and weighed myself numerous times a day in order to ensure my weight was where it “needed” to be. Yet it was never good enough. I was never good enough.
In time, however, my method to “solve problems” became disastrous. The number of hours I spent exercising each day was never ‘enough’, the amount of calories I allowed myself was always too much, even though it was dangerously low. My weight was never low enough. This ‘inner voice’ yelled at me relentlessly to exercise more, and eat less. It told me that no matter what, I wasn’t working hard enough. I was exhausted and overwhelmed, yet I couldn’t stop. Though I didn’t admit it to others as I wanted to “remain strong” and “save face”, there were many times that I was surprised to wake up in the morning, as many physical symptoms I experienced were worrisome.
As time passed, I was unable to hide the fact that I had an eating disorder. Friends and family caught on, and urged me to seek help. After several months of begging, pleading, and threatening, I was taken to treatment in Minneapolis. There, I met many other people who were struggling with eating disorders.
This year’s Eating Disorder Awareness Week theme is “Everybody Knows Somebody”, and let me tell you, it’s true. Sadly, eating disorders affect every population. They target women, men, old, young, black, white, Christians, non-Christians, rich, poor, and everything in between. I went to treatment with an 8 year old boy and a 60 year old woman. There were men and women. I met people who appeared to be incredibly social and outgoing, as well as people that were more reserved and shy.
Eating Disorders affect everybody. They do not discriminate. They are the 22 year old girl who spends countless hours at the gym, the 46 year old woman who knows every calorie she has consumed each day, the 27 year old guy who runs in his basement in 6 layers of clothes to try to “make weight”, the 8 year old boy who watches his mom diet and feels he must do so too in order to be “good enough”. They are the girl sitting next to you in church, the postman you see each day, the woman behind you at the store, and the young girl competing in gymnastics week after week. Everybody Knows Somebody. People struggling with eating disorders are intelligent, insightful, caring, responsible, hard working, funny, and gifted. Some come from broken homes, while others have supportive and close families. Some have been abused, others have been bullied. Some have experienced tragedy, others have been molded by the constant media messages they have seen over the years. Every person has his or her story, but every person is struggling and is worthy of help.
If you suspect someone you know has an eating disorder, don’t be afraid to talk to them. Educate yourself about eating disorders so that you understand the symptoms as well as the medical and psychological consequences of these devastating diseases. Don’t be afraid to approach the person you suspect is struggling. Tell him or her that you care and that you are worried about certain behaviors you are observing. Ask questions if you don’t understand something. I remember at my college graduation party, my grandma turned to me and said “Ok, I just have to ask and I’m sorry if I shouldn’t ask this, but do you just not get hungry?”. She asked it in such a beautiful way and I knew that she genuinely cared about me and wanted to understand this complex illness. In many ways it was a relief to have her ask that, as I could finally exhale and say, “no, actually I am hungry all the time. So so so hungry. It’s just like there is this voice screaming at me all day long that I’m not allowed to eat.” Her asking questions opened up the door for us to talk about what was going on. Offer to support your friend or loved one through this battle, but tell them when you need a break as well. These diseases are exhausting and they impact family and friends as well. Be open with your friend or family member, and let them know that you still care. In talking with many of the men and women I have met through treatment and in the years following, one of the key fears is that once friends and family find out about the disease, they will no longer love the person who is sick. There is a great deal of guilt and shame surrounding these diseases, which leads many to hide their struggles. Assure the person that you still care about him or her.
Eating disorders are devastating illnesses, and they are lethal. I met several people through my time in treatment that ultimately lost their struggle. These disorders affect at least 12 million people, as well as countless others who don’t come forward with their struggle. They are destructive and deadly, and it is crucial to promote awareness and education in order to develop prevention programs as well as treatment for those who suffer. It’s imperative for the sufferer to be surrounded by a support team who can help him or her defeat the ‘inner voice’ that has convinced them that they are not enough.
I never wanted to be that somebody. I didn’t set out to be “the girl with the eating disorder”. Yet, I am somebody. I have struggled, and have not yet reached the place I would like to be in the recovery journey. However, I am still alive and able to push forward through the support of friends and family. I have been blessed with an amazing team of support through out the years, and I can only hope that others would be surrounded with such influential, compassionate people. Without friends and family and professors, dietitians, and counselors I have had over the years, I would have given up completely. I am somebody, and as the motto for this year’s Awareness Week states, “Everybody Knows Somebody”. If you know somebody, let them know that you love and support them, and that they can fight this. And if you are a friend or family member of a “Somebody”, let me tell you, thanks. I’ve talked to many other men and women who have eating disorders. And we see how they cause pain, frustration, confusion, and fear in our siblings, parents, grandparents, aunts and uncles, cousins, teachers, pastors, friends, boyfriends, girlfriends, and everyone else in our ‘circle’. And let me just say, from each of us, thank you for letting us know that We Are Enough, even when we don’t believe it, and that We Can Win this thing, even when we doubt recovery is possible. Everybody knows Somebody, and the way to defeat this disease is through education, prevention, strong treatment programs, and supportive relationships.